2023 shaping up to be an exciting year for the Registry

Alzheimer’s Prevention Registry focused on new study opportunities and website features in 2023

Thank you for your continued support of our mission to end Alzheimer’s disease before losing another generation. As we kick off 2023, we are excited about the many new opportunities to participate in groundbreaking prevention research.

As we enter 2023, the team at the Alzheimer’s Prevention Registry would like to thank you for your continued support of our goal of connecting people to Alzheimer’s-focused research studies. 2022 was an exciting year and our commitment to end Alzheimer’s disease has never been stronger.

In 2022 we welcomed 21,095 new members to the Registry, featured 28 studies, and are now 385,590 members strong. Take a look at a couple highlights from 2022.

• In late 2021, we received a new grant from the National Institutes of Health (NIH), National Institute on Aging (NIA). This five-year project allows us to add new features to the Registry to improve your experience with our program and better connect you to research studies that interest you. In 2022 we completed the first phase of this project, transitioning the website technology platform. We are excited to leverage this technology and unveil new features and functionality in 2023 and beyond.
• With support from two other grants from the NIA, we were able to enroll 10,641 new members to our GeneMatch program. GeneMatch is open to adults ages 50-90 who live in the United States and who do not have a diagnosis of cognitive impairment such as Alzheimer’s disease or other dementias. If you or someone you know is in this age range and NOT already enrolled in our GeneMatch program, please visit joingenematch.org to learn more and enroll.
• Record numbers of members read this year’s monthly Alzheimer’s Prevention Bulletin articles about research findings and the latest scientific discoveries. Here are the top 4 most read articles from 2022:

• New study drug slowed cognitive decline in people with early Alzheimer’s
• Groundbreaking prevention study will positively impact future Alzheimer's research
• Report: Sustaining healthy brain behaviors requires individual and community commitment
• A new type of study allows for clinical research participation closer to home

“2023 looks to be a busy and exciting one,” said Jessica Langbaum, PhD, Co-Director of the Alzheimer’s Prevention Initiative. “We anticipate partnering with several new studies, offering you even more opportunities to participate in research. We will also be exploring ways to improve your experience with the Registry and study opportunities.”

We are looking forward to new research and discoveries in 2023. And you are a key to our success! Your willingness to spread the word and participate in research will bring us closer to a world free from Alzheimer’s disease. As always, thank you for your ongoing support of the Alzheimer’s Prevention Registry and your contributions to our work.